Understanding Respiratory Distress

Born with Epidermolysis Bullosa (EB), Alexis faced unimaginable challenges from birth, her skin as fragile as butterfly wings. Despite infections, daily wound care, and the heartbreaking diagnosis of stage four renal cancer, her parents, Alarna and Harley, dedicated themselves to giving her the best life possible. After Alexis’s passing, they now raise awareness for EB through DEBRA Australia, determined to support other families and honour their daughter’s legacy.